Newbies

[Vaughan & Fadzidah]

Hello,



We have just discovered today through an ultrasound of our 20
week old that there is a high probability of him having either a
cleft lip/cleft palate (or both).



We immediately surfed the net and found only a handful of
sites that had info related to this. We were interested to learn
that your site has a wealth of info on the subject.



We are trying to understand our alternatives with regard to
surgery and on going treatment. This is an especially big problem
for us as we live in Malaysia. In all likelyhood, we would not be
able to enjoy the best treatment available here.



I realise you need more info, but at this stage I would be
greatful just to start regular communication with your
organisation. We live in Kuala Lumpur, but would be willing to
travel far if it meant getting the very best treatment possible.
I see questions on insurance - what are the alternatives for non
- Americans?



Thanks in advance for your help, and for the web site.



Sincerely,







Vaughan and Fadzidah Willoughby

[Lori C.(tlcarst@rconnect.]

Hi! I just read your message about your baby. My son is now 13
weeks and has a unilateral(one-sided)cleft lip and palate. His
lip repair is scheduled for 6/23 in Iowa City, IA. This site is
good, but I'd like to tell you about one that has helped us
immensely. Go to www.widesmiles.org It is a wonderful resource
and I especially love the CleftTalk e-mail group. It's a bit
overwhelming at first because you will receive 100+ messages a
day. Just post your own first message and MANY people will be
there to welcome you and answer your questions. I know there is
one mother there from Jerusalem. Good luck and hope to hear from
you soon. Please privately e-mail me if you'd like. Lori
Carstensen