PIERRE ROBIN SYNDROME

[ANGELWINGS@FTC-I.NET]

WOULD LIKE INFORMATION CONCERNING PIERRE ROBIN SYNDROME AND
SUPPORT GROUPS. I HAVE A 3 1/2 MONTH OLD DAUGHTER WITH THIS
SYNDROME.

[mazimono]

I would be happy to talk to you concerning Pierre Robin. Our
son, Theo, is now 14 months old. He had his cleft palate repaired
at 4 days old and got his trach out at 6 months of age. He is a
happy, healthy little boy now. Please see our story on this
website. Our phone number is also listed. Please feel free to
call me. I am a stay-at-home mom. Hope to hear from you soon.
Mary Ann

[Jean Spence]

I assume you've gotten some reponses on Pierre Robin. I have a
4 year old daughter who has it. She is doing great now, even
though the first few months were tough. If you want any
information, contact me at LemN96@aol.com

[Regis82.AOL.COM]

I need to know if your child ever experienced Pneumonia

[THERESA CORRIGAN]

[THERESA CORRIGAN]

HELLO, MY NAME IS THERESA CORRIGAN FROM REP. OF IRE. I HAVE
THREE DAUGHTERS, TWO HAVE PR. MY HUSBAND ALSO HAD IT. I DONT KNOW
ANY OTHER FAMILY WITH IT, SO I WOULD LIKE TO CONTACT, SOME PEOPLE
ON THE NET. I WOULD BE VERY GREATFUL IF YOU COULD SEND SOME
E.MAIL ON PR IF YOU CAN.



YOURS, THERESA CORRIGAN. fjcussen@tinet.ie

[db4113@dragonbbs.com]

My son has PRS..and he gets phomonia quite often. I have had
Dr's ask me why he gets it so often...and no one can tell me. If
you want talk more about this, you can email me at
db4113@dragonbss.com

[BJ]

WHAT IS PHOMONIA?

[Joyce Badgett]

Niece born 4/25/99 with PR--family is histerical. need any
info. She is at UNC Chapel hill, (North Carolina)



my e-mail is jbadgett@ac.net



Thank you so much