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Posted: **Fri Jan 04, 2008 5:36 pm**

I meant to say that my daughter has a recessed jaw. Is it common with cleft palate babies? The oral surgeon said it's too soon to tell but it sure looks like it to us. She also drools like crazy, which I know is due to teething but i literally have to change her out of approx. 10 bibs per day. She's like a faucet.

Not to compare her but I thought it was odd that my other children didn't. Anyone experience the same?

Posted: **Fri Jan 04, 2008 7:35 pm**

A small lower jaw (micrognathia) is one symptom of Pierre Robin Sequence. Have the doctor's ruled that out? PRS often includes a cleft palate.
http://www.cleftline.org/publications/pierre_robin

Posted: **Sat Jan 05, 2008 3:14 am**

I agree. It does sound like Pierre Robin Syndrome/Sequence.

My son was born with the same symptoms. Our geneticist finalized that he was born with Pierre Robin. According to statistics, the condition is very rare 1/1M, but treatable. There are different levels of micrognathia and in some severe cases a jaw extension is necessary. In my son's case we chose not to extend his lower jaw but to provide time and assist him to developmentally overcome. Our story is available at: http://www.cleft.org/families/theodoros.htm

You can find more about micrognathia and the possibility of Pierre Robin through the Online Mendelian Inheritance in Men (OMIM), available by the National Center for Biotechnology Information (NCBI) and Johns Hopkins University.
http://www.ncbi.nlm.nih.gov/entrez/disp ... ?id=261800

Let me or my wife know if you have any questions about our experiences.

Gregory
(11yoB, PRS)

Posted: **Sun Jan 06, 2008 10:29 pm**

my daughter has pierre robin. When she was born it was very noticeable but the PS said that as she got older, her tongue would be pushing her bottom jaw out and that has in fact happened. It is still recessed but not as noticeable. She also drools like crazy. We go through at least 15 bibs a day. The PS also said that when she has her palate repair, that will push the jaw forward as well. Hope this helps, sandy.

Posted: **Mon Jan 07, 2008 2:13 pm**

My husband (who is in his 30's) had a cleft palate and recessed jaw. He was never diagnosed with PRS, but may have had it. (not sure if they had an exact diagnosis back then) He never received much orthodontic care as a child, and 2 years ago he ended up having to have his upper jaw moved forward because of severe TMJ and headaches. The surgery was horrible and we are trying to make sure that Jackson has early orthotic attention to avoid problems later. We have a orthodontist on our cleft team, so maybe you could check with them. It is definitely a common problem with cleft babies. One of the many.......... :roll:

Have a good week!
Allison

Posted: **Tue Jan 08, 2008 2:13 pm**

Hi Allison! Just wondered what orthodontist/dentist you use and if he/she is in Alabama?

Posted: **Tue Jan 08, 2008 2:32 pm**

WOW! I HAD NO IDEA! THANK YOU SO MUCH FOR THIS INFORMATION. MICHELLE

SMILES

RECESSED JAW

RECESSED JAW

small lower jaw

Orthodontics