SMILES

i have got a new baby with cleft palate large size>
the problem that we do not have a specialist doctor in our city because no one can travel outside Gaza>
i have a very large problem in feeding my baby. i don't know how to manage. please your advise.
sorry my English is week

Where do you live? What bottle are you using? I want to help, I can get some bottles you can squeeze and that pushes the milk into their cheek and then they can drink it.

Are you able to receive packages? There are several different types of special bottles/nipples. Some are called Haberman, some are called pigeon feeders. I'll see if I can find out where you can order them from.

http://www.cleftadvocate.org/feeders.html
Here's a link to various bottles. It looks like the maker of the Haberman does not allow for it's export. The pigeon feeder may be your best bet.

http://www.pcrf.net/medical/cleft.html
Here's a link to a group which provides cleft surgery and other services in Gaza. If you scroll to the bottom of the page there's a "contact us" link. Perhaps they can help.

Here's another resource that might be helpful.

Operation Smile Palestine

Nafiz Abu-Shaban, MD
P.O. Box 1111
Remel, Gaza City
Tel: 972 8282 7720
Fax: 972 8282 7650
nafiz2000@hotmail.com

http://store.enfamil.com/bottles_and_nursers.html
The last two feeders shown on this link may also be an option. They're also called Mead-Johnson feeders/bottles.

no one can help me?????

I guess I'm not sure what kind of help you're looking for. Did you read any of my replies? Were any of them helpful? What happens when you try to feed your baby? How are you currently trying to feed your baby?

the problem that i cant get the special bottle and i want to learn how to feed him with a normal bottle

Some babies with clefts are not able to use a regular bottle until they've had surgery or an artificial palate (Latham device, which you're probably also unable to get), some can if the nipple has been cut so it has a bigger hole. Some of the special bottles look similar to regular bottles. What happens when you try to feed your baby? Is the baby able to suck? Does the milk or formula come back out? Does the baby eat too slowly to get enough? Is the baby uninterested in drinking? I have a new niece with UCL with gum involvement who I haven't met yet (since I live in a different state). I'll let others with firsthand experience chime in as to what might help.

For: "mfarra":

Hello. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). How are you? Here is my Personal Story link:

http://worldcf.org/index.php?option=com ... &Itemid=39 (Craniofacial anomalies)

Are you able to travel to the United States?

My Craniofacial/Cleft Surgeon is Dr. Salyer. He is the Founder & Chairman of the World Craniofacial Foundation in Dallas, Texas USA. You should contact them and see if they will be able to help you. Here is the information:

World Craniofacial Foundation
P.O. Box 515838
Dallas, Texas 75251-5838
Phone Number: 1-800-533-3315
Email: info@worldcf.org
Website: http://www.worldcf.org

Please let me know how things go. I wish the best for you and your family.

Sincerely,

Georgette Couvall

I found this info on another website:
Position -- Most of our parents found that feeding the baby in an upright position reduced the problem of food escaping into the nose. Several even experimented with using an infant seat to keep the baby upright since newborns tend to naturally dissolve into a little lump when placed upright.

there is more problem that my baby cry from gas in his belly> how can i mange this problem

use baby gas drops or very small amount of mylanta. See a doctor about Reflux.