i can not feed my new baby with cleft palate

Children and adults with cleft lip and/or palate issues

Moderator: Moderators

i can not feed my new baby with cleft palate

Postby mfarra » Tue Aug 21, 2007 12:41 am

i have got a new baby with cleft palate large size>
the problem that we do not have a specialist doctor in our city because no one can travel outside Gaza>
i have a very large problem in feeding my baby. i don't know how to manage. please your advise.
sorry my English is week
mfarra
Member
Member
 
Posts: 25
Joined: Sun Aug 19, 2007 3:59 am
Location: palestine

Postby samjune79 » Tue Aug 21, 2007 9:06 am

Where do you live? What bottle are you using? I want to help, I can get some bottles you can squeeze and that pushes the milk into their cheek and then they can drink it.
samjune79
Advanced Member
Advanced Member
 
Posts: 73
Joined: Sun Apr 29, 2007 10:09 pm

special bottles/nipples

Postby Linda S S » Tue Aug 21, 2007 2:22 pm

Are you able to receive packages? There are several different types of special bottles/nipples. Some are called Haberman, some are called pigeon feeders. I'll see if I can find out where you can order them from.
Linda S S
Advanced Member
Advanced Member
 
Posts: 97
Joined: Mon Jul 30, 2007 3:45 pm
Location: MA, USA

special bottles/nipples

Postby Linda S S » Tue Aug 21, 2007 2:32 pm

http://www.cleftadvocate.org/feeders.html
Here's a link to various bottles. It looks like the maker of the Haberman does not allow for it's export. The pigeon feeder may be your best bet.
Linda S S
Advanced Member
Advanced Member
 
Posts: 97
Joined: Mon Jul 30, 2007 3:45 pm
Location: MA, USA

services in Gaza

Postby Linda S S » Tue Aug 21, 2007 2:42 pm

http://www.pcrf.net/medical/cleft.html
Here's a link to a group which provides cleft surgery and other services in Gaza. If you scroll to the bottom of the page there's a "contact us" link. Perhaps they can help.
Linda S S
Advanced Member
Advanced Member
 
Posts: 97
Joined: Mon Jul 30, 2007 3:45 pm
Location: MA, USA

Operation Smile Palestine

Postby Linda S S » Tue Aug 21, 2007 3:42 pm

Here's another resource that might be helpful.

Operation Smile Palestine

Nafiz Abu-Shaban, MD
P.O. Box 1111
Remel, Gaza City
Tel: 972 8282 7720
Fax: 972 8282 7650
nafiz2000@hotmail.com
Linda S S
Advanced Member
Advanced Member
 
Posts: 97
Joined: Mon Jul 30, 2007 3:45 pm
Location: MA, USA

Postby Linda S S » Tue Aug 21, 2007 7:38 pm

http://store.enfamil.com/bottles_and_nursers.html
The last two feeders shown on this link may also be an option. They're also called Mead-Johnson feeders/bottles.
Linda S S
Advanced Member
Advanced Member
 
Posts: 97
Joined: Mon Jul 30, 2007 3:45 pm
Location: MA, USA

Postby mfarra » Tue Aug 28, 2007 9:10 am

no one can help me?????
mfarra
Member
Member
 
Posts: 25
Joined: Sun Aug 19, 2007 3:59 am
Location: palestine

Resources in Gaza and on internet

Postby Linda S S » Tue Aug 28, 2007 10:00 am

I guess I'm not sure what kind of help you're looking for. Did you read any of my replies? Were any of them helpful? What happens when you try to feed your baby? How are you currently trying to feed your baby?
Linda S S
Advanced Member
Advanced Member
 
Posts: 97
Joined: Mon Jul 30, 2007 3:45 pm
Location: MA, USA

Postby mfarra » Tue Aug 28, 2007 3:42 pm

the problem that i cant get the special bottle and i want to learn how to feed him with a normal bottle
mfarra
Member
Member
 
Posts: 25
Joined: Sun Aug 19, 2007 3:59 am
Location: palestine

feeding options

Postby Linda S S » Tue Aug 28, 2007 5:04 pm

Some babies with clefts are not able to use a regular bottle until they've had surgery or an artificial palate (Latham device, which you're probably also unable to get), some can if the nipple has been cut so it has a bigger hole. Some of the special bottles look similar to regular bottles. What happens when you try to feed your baby? Is the baby able to suck? Does the milk or formula come back out? Does the baby eat too slowly to get enough? Is the baby uninterested in drinking? I have a new niece with UCL with gum involvement who I haven't met yet (since I live in a different state). I'll let others with firsthand experience chime in as to what might help.
Linda S S
Advanced Member
Advanced Member
 
Posts: 97
Joined: Mon Jul 30, 2007 3:45 pm
Location: MA, USA

To: "mfarra"

Postby gc0447 » Wed Aug 29, 2007 2:17 am

For: "mfarra":

Hello. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). How are you? Here is my Personal Story link:

http://worldcf.org/index.php?option=com ... &Itemid=39 (Craniofacial anomalies)

Are you able to travel to the United States?

My Craniofacial/Cleft Surgeon is Dr. Salyer. He is the Founder & Chairman of the World Craniofacial Foundation in Dallas, Texas USA. You should contact them and see if they will be able to help you. Here is the information:

World Craniofacial Foundation
P.O. Box 515838
Dallas, Texas 75251-5838
Phone Number: 1-800-533-3315
Email: info@worldcf.org
Website: http://www.worldcf.org

Please let me know how things go. I wish the best for you and your family.

Sincerely,

Georgette Couvall
gc0447
Support Member
Support Member
 
Posts: 246
Joined: Mon Jun 12, 2006 12:35 pm
Location: Illinois

feeding position

Postby Linda S S » Wed Aug 29, 2007 10:22 am

I found this info on another website:
Position -- Most of our parents found that feeding the baby in an upright position reduced the problem of food escaping into the nose. Several even experimented with using an infant seat to keep the baby upright since newborns tend to naturally dissolve into a little lump when placed upright.
Linda S S
Advanced Member
Advanced Member
 
Posts: 97
Joined: Mon Jul 30, 2007 3:45 pm
Location: MA, USA

Postby mfarra » Fri Sep 14, 2007 4:00 pm

there is more problem that my baby cry from gas in his belly> how can i mange this problem
mfarra
Member
Member
 
Posts: 25
Joined: Sun Aug 19, 2007 3:59 am
Location: palestine

Postby samjune79 » Fri Sep 14, 2007 9:31 pm

use baby gas drops or very small amount of mylanta. See a doctor about Reflux.
samjune79
Advanced Member
Advanced Member
 
Posts: 73
Joined: Sun Apr 29, 2007 10:09 pm

Next

Return to Cleft Lip and Palate

Who is online

Users browsing this forum: No registered users and 2 guests

cron