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Hi , im new and have a son with cleft of the soft palate

PostPosted: Wed Apr 11, 2007 8:25 pm
by nikkie8622
Hi , i just thought id introduce myself to you all :) Im Nikkie , 21 from the Uk , i have a little girl who is 3 , named reanna , and a 7 months old baby boy named Mason , he is due his surgery next month to repair it , and to say the least im terrified :(
Anyway im looking forward to getting to know you all and sharing the joy and tears along the way :)
Thanks Nikkie

welcome

PostPosted: Thu Apr 12, 2007 11:32 am
by Heide
welcome and all the best for your son's upcoming surgery. Heide

PostPosted: Thu Apr 12, 2007 5:42 pm
by jacksmom
Nikki, welcome to the group! I also have a nine month old son with a cleft palate. His surgery is scheduled for next Wednesday, the 18th, and I am so ready to have it behind us! This website has been a great resource for information! Let me know if you need anything!
Allison

PostPosted: Thu Apr 12, 2007 10:44 pm
by nikkie8622
Thanks : :D im so glad now i have somewhere to come! ive been going through this on my own as i dont know anyone else going through it , Jacksmom , how is your sons speech? can he say daddy , or dadda ?
Im trying to teach mason but all i succeed in doing is making him laugh!
He can say mamanna , for reanna his sister , mamma , for me , nanna , obvious :) tanya , his godmother , oh and he can also say nag nag nag lol.

PostPosted: Tue Apr 17, 2007 12:47 pm
by jacksmom
Nikkie, sorry it has taken me so long to respond! It has been a crazy week trying to get everything in order for Jackson's surgery tomorrow! To answer your question, the only sound he really makes is mamamma! Our PS said that we would start speech therapy after his surgery, so I will be anxious to see how that goes! Well, sorry to be so short, let me know if I can help! I will definitely let you know how the surgery went when we get back home! Take care of Mason!
Allison

PostPosted: Tue Apr 17, 2007 10:19 pm
by HollyBee
Hi Nikki! Welcome. My little guy has the same condition. We go on May 3rd for his check-up with the plastic surgeon and he told us that the surgery will likely be 6-8 weeks after that...so soon. I found this board after Graeme was born and I can tell you that it has been great.

Take Care

PostPosted: Thu May 03, 2007 1:39 am
by babycole
Welcome! My son has recently started speech therapy. He says mama, here, wa wa and sometimes other words but that is all for now. His therapist thinks a lot of his problem is that he has a very talkative older brother :D .