SMILES

Hi everybody,
I'm a new member on here, but i have been reading the forum since my son was born 6 months ago with a soft palate cleft. It seems so mild compared to some of the stories I have read on here, but to me it was just as devastating. He had his repair two days ago by the top surgeon in South Africa, and he is doing really well. It's nice to read other people's stories on how they coped. Thankfully the worst is behind us, but i will always have the guilt that i may have done something wrong to cause it. Thanks for all your stories! They got me through the worst in the beginning! Good Luck with all your babies.

Kerri Bunch
Cape Town - South Africa

I hope everything went well, my little guy will have his surgery likely by July for the same condition. How was your babe doing for starting to talk? I went to see the speach therapists in our area the other day and she was trying to tell me that we were going to have a lot more surgery's that just ONE that I've been told about for now, I said that's fine but I'll cross that bridge when it comes, for now I'm preparing for one. Glad to hear that it went well, keep us posted.

Dear Kerri,

Hello. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). How are you? Here is my Personal Story link:

http://worldcf.org/index.php?option=com ... &Itemid=39 (Craniofacial anomalies)

I thought maybe you might want to read this story about a boy from Africa who was born with Crouzon Syndrome. Here is his Personal Story link:

http://worldcf.org/index.php?option=com ... &Itemid=60 (Crouzon Patient from Africa)

Sincerely,

Georgette Couvall
georgettecouvall@hotmail.com (Email)