Hi! My name is Jen. I have an almost 4 yr. old son who was born with Beckwith Wiedemann Syndrome and a cleft on the soft palate. He had the repair done @ 8 1/2 mo., and has been in speech therapy ever since. We just attended his annual cleft clinic visit, and pharyngeal flap surgery was recommended. Not a surprise he needs surgery, but just a bit nervous about it. He has had nine other surgeries for various other things, (only one for the cleft), so we should be used to it by now, but we just need a push in the right direction.
So my question is, Can anyone tell me what to expect from this surgery? The outcomes? (good and bad) We're going back to the Dr. office soon to discuss the surgery in more detail, but I would like to find out from others who have had or have children who have had this procedure done.
Thanks for your help. Jen