Smith-Lemli-Opitz Syndrome

Children and adults with cleft lip and/or palate issues

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Smith-Lemli-Opitz Syndrome

Postby Darrell » Sun Dec 28, 1997 8:57 pm

For anyone who has read my earlier postings you know the
anxiety that our family has endured the past couple of months. We
found the anomolies strange but accepted them. Unfortunatly each
time we went in for an ultrasound something new showed up. The
last test showed yet a few more items and when put together was
looking less like isolated birth defects and more like a
syndrome. A test in Baltimore gave us the bad news. I will not be
posting anymore to this site except for to reply on this subject.
SLO involves several things including a cleft. You can visit <a
href="http://members.aol.com/slo97/index.html">http://members.aol.com/slo97/index.html</a>
for more info. I thank all who have answered my questions and
offered their prayers. We will try again as we have a 75% chance
for a successful pregnancy. No, SLO is not usually compatiable
with life. But we have proof we can make good babies as our first
born is now 15 months old. Thanks again and god bless. We will
heal.
Darrell
 

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