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[amambroyan]

My husband and I just found out that our baby will be born with a small unilateral cleft lip. We are trying to find pictures but all we see are pics with babies who are born with severe cleft lips, or cleft lips AND palate but that is not our case. We just want to be prepared when the baby is born. Also we're waiting for the amnio results because our doctor said that Down Syndrome can be associated with cleft lips! Any comments?
Thank you in advance!

[pkett2]

Welcome! You will find alot of support here. We all have been where you're at now! Try not to worry about the test results. I chose not to get the amnio done, b/c I was told that clefts don't always go with other deformities. My U/S showed a cleft lip that seemed to go all the way up to the nose. We weren't sure about the palate. When he was born, he was beautiful!!!! It was no where near what I had expected. His palate is fine & he is nursing wonderfully. Good luck to you. Here's a picture of my Dino Joseph.



http://i104.photobucket.com/albums/m186 ... tti-12.jpg

[amambroyan]

Thank you so much for your reply. Your baby is absolutely beautiful...I did the ultrasound at 18 weeks so I hope that what they saw with the cleft lip is not worse than that.

[gc0447]

For: "amambroyan":

Hello. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). Welcome to the group. How are you? Here are my Personal Story & Before and After Picture links:

http://www.craniofacial.net/hypertelorism.htm (Anopthalmus with Frontonasal Dysplasia)
http://www.craniofacial.net/testimonials.htm (Georgette, Patient)
http://www.worldcf.org/support_groups.cfm (Craniofacial anomalies)
http://extratv.warnerbros.com/cmp/spotl ... 06_09a.htm
http://www.cleftadvocate.org/ff0104Georgette.html

Congradulations about your soon-to-be-born baby. I wish him/her the best.

Sincerely,

Georgette Couvall
georgettecouvall@hotmail.com (Email)

[gc0447]

Hi again. It's Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). I'm sorry, but I typed one of my Personal Story/Before and After Picture links out wrong. Here it is:

http://extratv.warnerbros.com/cmp/spotl ... 06_09a.htm

Thanks.

Sincerely,

Georgette Couvall

[gc0447]

Hi again. It's Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). I'm sorry, but I typed one of my Personal Story/Before and After Picture links out wrong. Here it is:

http://extratv.warnerbros.com/cmp/spotl ... 06_09a.htm

Thanks.

Sincerely,

Georgette Couvall

[azdrews]

Hello! I have an 8 month old little guy who was born with a unilateral cleft lip only. He had his lip repair done at 3 1/2 months and looks amazing now. We, too, looked for as many pictures as we could find to prepare ourselves. Here are a few of my little guy:

On his birthday:

http://im1.shutterfly.com/procserv/47b6 ... BZuXDluzaU

And here he is a few weeks ago!

http://images.costcophotocenter.com/348 ... 9867ot1lsi

Good luck to you and your family!

[gc0447]

For: "azdrews":

Hello. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). Welcome to the group. How are you? Here are my Personal Story & Before and After Picture links:

http://www.worldcf.org/support_groups.cfm (Craniofacial anomalies)
http://www.cleftadvocate.org/ff0104Georgette.html

I'm from Illinois. If you don't mind me asking, where are you from? Just wondered. I wish the best for you and your family. Merry Christmas and Happy New Year.

Sincerely,

Georgette Couvall
georgettecouvall@hotmail.com (Email)

[gc0447]

For: "azdrews":

Hello. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). Welcome to the group. How are you? Here are my Personal Story & Before and After Picture links:

http://www.worldcf.org/support_groups.cfm (Craniofacial anomalies)
http://www.cleftadvocate.org/ff0104Georgette.html

I'm from Illinois. If you don't mind me asking, where are you from? Just wondered. I wish the best for you and your family. Merry Christmas and Happy New Year.

Sincerely,

Georgette Couvall
georgettecouvall@hotmail.com (Email)

[amambroyan]

any other pics you can send?

Thank you in advance!

[gc0447]

TO: "amambroyan":

Hello. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). How are you? Here is my Personal Story link:

http://www.worldcf.org/support_groups.cfm (Craniofacial anomalies)

Dr. Salyer (My Craniofacial/Cleft Surgeon) was the director of the International Craniofacial Institute (http://www.craniofacial.net) in Dallas, Texas but retired in November. Here are the links from the International Craniofacial Institute (http://www.craniofacial.net) website that show Before & After Pictures of some of Dr. Salyer's patients with Cleft Deformities and Down Syndrome in which he has operated on:

http://www.craniofacial.net/down_syndrome.htm
http://www.craniofacial.net/cleft_lip_pictures.htm

Dr. Salyer (My Craniofacial/Cleft Surgeon) is the founder of the World Craniofacial Foundation (http://www.worldcf.org) in Dallas, Texas and continues to be involved with the World Craniofacial Foundation (http://www.worldcf.org). His mission now is to build new Craniofacial/Cleft Centers around the world. Here are the links from the World Craniofacial Foundation (http://www.worldcf.org) website that show Before & After Pictures of some of Dr. Salyer's patients with Cleft Deformities and Down Syndrome in which he has operated on:

http://www.worldcf.org/downs.cfm
http://www.worldcf.org/facial.cfm
http://www.worldcf.org/genetic_cleft.cfm
http://www.worldcf.org/unilateral_clefts.cfm
http://www.worldcf.org/bilateral_clefts.cfm

Please let me know how things are going. I wish the best for you and your family.

Sincerely,

Georgette Couvall
georgettecouvall@hotmail.com (Email)

http://www.worldcf.org/support_groups.cfm (Craniofacial anomalies)