new here

[jasmbrooks]

hey, i'm new here. have an 8 year old son born with a severe unilateral cleft lip and palette. he has had roughly 16 surgeries. we are about a week away from the bone graft. anyone out here can tell me what to expect. it would be greatly appreciated. thanks, melissa

[gc0447]

Dear Melissa,

Hello. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org). How are you? Welcome to http://www.cleft.org. Here are my Personal Story & Before and After Picture links:

http://www.craniofacial.net/hypertelorism.htm (Anopthalmus with Frontonasal Dysplasia)
http://www.craniofacial.net/testimonials.htm (Georgette, Patient)
http://www.worldcf.org/support_groups.cfm (Craniofacial anomalies)
http://extratv.warnerbros.com/cmp/spotl ... 06_09a.htm
http://www.cleftadvocate.org/ff0104Georgette.html

I'm from Illinois. If you don't mind me asking, where are you from? Just wondered. Please let me know how things are going for you.

Sincerely,

Georgette Couvall
georgettecouvall@hotmail.com (Email)

[gc0447]

To: jasmbrooks

Hi. I got your Private Message. I want to let you know that there are also two other Cleft websites that have Message Boards:

http://www.craniology.org
http://www.cleftadvocate.org

Sincerely,

Georgette Couvall

[Hilla]

Hello

Welcome. I can not believe 16 surgeries!!! and the boy is only 8! That must be tough. My daughter was born with very wide unilateral cleft lip and palate, she has had one surgery. She is 6 months old...so many surgeries to come...

Good luck with bone graft. You probably know how it is done in medical way (and there is always risks bleeding and infections), but the how to deal with the feelings are different.

-Laura