NEW HERE! Hello everyone, here is my cleftprincess.

Children and adults with cleft lip and/or palate issues

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NEW HERE! Hello everyone, here is my cleftprincess.

Postby Hilla » Tue Nov 28, 2006 7:07 pm

Hello

My daughter was born (with wide unilateral cleft lip and palate) in May 2006. Here is her story:

http://halkiovave.vuodatus.net

I would be happy to talk other cleft families and share experiences.

Have a great wninter!!!
Hilla
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Craniofacial Patient: Georgette Couvall

Postby gc0447 » Tue Nov 28, 2006 7:34 pm

Hello. Welcome to the group. My name is Georgette Couvall (Dr. Salyer's patient: http://www.worldcf.org & http://www.craniofacial.net). How are you? Here are my Personal Story & Before and After Picture links:

http://www.craniofacial.net/hypertelorism.htm (Anopthalmus with Frontonasal Dysplasia)
http://www.craniofacial.net/testimonials.htm (Georgette, Patient)
http://www.worldcf.org/support_groups.cfm (Craniofacial anomalies)
http://extratv.warnerbros.com/cmp/spotl ... 06_09a.htm
http://www.cleftadvocate.org/ff0104Georgette.html

I'm from Illinois. If you don't mind me asking, where are you from? Just wondered. I wish the best for you and your family.

Sincerely,

Georgette Couvall
georgettecouvall@hotmail.com (Email)
gc0447
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Hi

Postby Hilla » Tue Nov 28, 2006 8:18 pm

I am from Finland but I also have family members living in Nebraska.

:D Laura
Hilla
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Postby Mum from down under » Tue Nov 28, 2006 10:55 pm

Hi Laura

A big welcome to our group. Here you will find peace and discover you are not alone. Baby Hilla as a gorgeous little girl. I love those blue eyes.!!! What date in May was she born ?? :D
Trish & Evan

Evan (01.05.06) UCLP


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Hi

Postby Hilla » Tue Nov 28, 2006 11:03 pm

Thank you for the warm welcome. I am so glad that I found this support group. Hilla was born 05/23/06.


cleft babies rock, Laura
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Postby hatchedk » Wed Nov 29, 2006 10:40 pm

HI! My little Andy was born May 16Th, and his cleft looked just like your little ones! How sweet your site is! Glad to read your story!
Karen
Karen...Mom to Katie 9/9/04(NCA) and Andrew 5/16/06 (UCLP)
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Hello

Postby Hilla » Thu Nov 30, 2006 4:22 pm

HUG to Andy. Lets keep each other updated how things are going:)


-Laura
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