Median Cleft Lip

[lorabeas]

Hello everyone! I am new to the group and this is my first post. My daughter Meadow was born with midline cleft lip and palate. We have not met another individual with this type of cleft. She has other anomalies associated with the median cleft.

I would love to speak with someone else with this condition. I look forward to a response!!!

Lora, mom to Meadow Grayce, 2 yrs, AL[/b]

[gregory]

Lora,

I am not sure if you did receive a response from anyone with a median cleft lip from this group, but I noticed that you did search and replied to older postings related to median cleft.

You probably have attempted so, but you may be able to contact them since some of them have included an email address in their postings.

I hope that Meadow is doing well.

Gregory (9yoB, PRS)

[lorabeas]

Hi Gregory! I actually got one reply. I sent her an e-mail and she wrote me back. We exchanged pictures of the children. It was so amazing to finally see another little face that looked like Meadow's did.
She has invited me to another support group for Frontonasal Dysplasia, and she post alot there.

Thanks,
Lora, mom to Meadow, 24 months, median cleft lip/palate, AL