i am 21 weeks pregnant, and my baby was diagnosed with median cleft lip today. it is not a unilateral or a bilateral cleft lip. that they confirmed.
the doctors (specialists at childrens & womens hospital) told us today that the median cleft goes through the lip, and into the nostrils, that the tip of the nose is collapsed, that they suspect the cleft goes through to the right eye, that they could not find the right eyeball, and that the eyes from inset to inset were 5 mm too far apart (20 mm and should be 15mm) apparently this is called hypertelorism. everything else on the baby is fine, including the structure of the brain, the heart, feet, hands, spine, etc, etc.
beyond this information we were given absolutely no information. we have been searching the web to learn more. please, if you have information that may help us to learn more of our babies potential problems, let us know. i am having an amnio tomorrow morning, but apparently that cannot diagnose all of the potentially related syndromes. we are also having another ultrasound with the specialists (a perinatologist & geneticist) in two weeks, in which they hope to get a better view of the right side of the baby's face (where they couldn't find the eyeball, and suspect the cleft goes to the right eye).
thanks so much for your help, deb.