Seeking any imformation on Pierre Robin Syndrome

[Student]

I have a fifteen year old cousin whom has suffered from Pierre
Robin Syndrome her whole life. I am doing a report on her
condition and haven't found very much imformation on the subject.
I would greatly appriciate any imformation anyone could post for
me. The date is 1-20-98. Any information I can get within the
next month or two is greatly needed. Thanks!

[CDCS4NANCE@AOL.COM]

OUR SON IS 14 AND HAS PRS, AND HEART PROBLEMS AS WELL. THERE
IS AND ORG. CALLED NORD THAT MIGHT OFFER YOU SOME ADDITIONAL INFO
O BOX 8923 NEW FAIRFIELD,CT O6812-8923 I'M IN SEARCH OF WHAT
THE LIFE EXPECTANCY IS FOR PRS PERSONS IS, IF ANY INFO PLEASE
SEND. THANKS, CDCS4NANCE@AOL.COM