Pierre Robin Syndrome/Sequence

[Aubrey Fey]

I have a 3y/o son who was diagnosed in February 98 with
submucous cleft. However he has multiple problems which together
seem to equal PRS. None of his doctors have mentioned PRS to me
or each other. In fact, I learned of its existence quite by
accident through other parents at the children's hospital where
his surgery was done in March of 98. Oddly enough, the child of
these well-informed people was also being treated by my son's
plastic surgeon. I have yet to confront the man, I want to have
all the info ready. But I anm having a devil of a time compiling
info on PRS. Can anyone help? My email is
afey@linknet.kitsap.lib.wa.us Thank you.



<b>From: </b>Aubrey Fey

<b>Category: </b>Pierre Robin Syndrome

<b>Date: </b>05 Aug 1998

<b>Time: </b>19:16:29

<b>Remote Name: </b>198.187.135.246




<h3>Comments</h3>


I have a 3y/o son who was diagnosed in February 98 with
submucous cleft. However he has multiple problems which together
seem to equal PRS. None of his doctors have mentioned PRS to me
or each other. In fact, I learned of its existence quite by
accident through other parents at the children's hospital where
his surgery was done in March of 98. Oddly enough, the child of
these well-informed people was also being treated by my son's
plastic surgeon. I have yet to confront the man, I want to have
all the info ready. But I anm having a devil of a time compiling
info on PRS. Can anyone help? My email is
afey@linknet.kitsap.lib.wa.us Thank you.