I am a rather new mother my daughter is 3 mos. old and was
born with a cleft palate. Her facial features are fine, but the
inside of her mouth is abnormal. For the first month of her life
my husband and I didn't even talk about it. Now I found out that
she wasn't getting the proper medical treatment and because of
that she did not gain wait her first three months. My husband and
I are finally talking about it and able to discuss our plans and
feelings. It's very difficult emotionally to even admit that
there is something wrong with your baby. I still have a hard time
dealing with the emotions surrounding this. Also since medical
science doesn't know how this could of occurred I go over and
over my pregnancy wondering, just wondering if it was something I
did, or didn't do. However you can never have the answer to the
question. Also the thought of my little tiny baby having to go
into surgery in the next year just makes me cry. I'm a christian
woman and I believe in miracles but this has been a complete blow
to my faith in God. I still believe that God is in control of her
and me, but its hard to when I see her throat. As for the effects
on the family all the family calls now for daily or bi-daily
check-ups on Cassandra's feedings and the main question is "
has she gained weight yet?"
I too was glad to find this sight it offers hope and insight
to other people with this problem. I would love to chat with
anyone regarding this and how they deal with all the
complications and emotions.
My e-mail is
lisamatthews_98@yahoo.com