hi! i am pol from the philippines. i have a baby with apert syndrome. you could see her in www.apert,org/toribio i have been through a lot of websites and emailed a lot of organizations to no reply. maybe by posting in here they can notice and help me.
my angel is 5 months old. in our forums with apert parents their babies are going through a lot of surgeries in their early months. but for my angel there are no scheduled surgeries because we could not afford it. i hope angel could hold on. thank you and more power to smiles...