by sandlos@golden.net » Mon Aug 16, 1999 5:52 pm
My 6 yr old with has had the Ilizarov procedure done 5 times.
I believe it is a form of distraction osteogenesis. The jaw is
partly fractured on both sides, and "screws" inserted
above and below. We turn the screws daily with new bone growing
the gap as we force the jaw apart. Does this sound familiar? We
have it done at the Hospital for Sick Children in Toronto. My son
has Pierrre Robin with an extremely small mandible that showed no
catchup growth. We've had good results from the surgeries and are
hopeful that his trach and g-tube will be removed in the next
year. You can respond here or e-mail me at home... Debra