SMILES
Support group dedicated to improve the lives of children and adults with cleft lip and palate.
Cleft Lip Repair
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Cleft Lip Repair
by Jenny » Tue Mar 21, 2000 12:15 pm
We are in the process of scheduling our son's first lip repair surgery, he was born with a unilateral cleft lip and palate(soft palate). I have read about the surgery and what to expect from a medical standpoint, but would like to know what to expect emotionally. We have a six year old daughter, and I am also unsure how to prepare her before and how to talk to her about it afterward. Any advise?
- Jenny
Re: Cleft Lip Repair
by Di » Wed Mar 22, 2000 11:50 am
Hi
I have a 6 week old son who was born with a unilaterial cleft lip & bilaterial cleft palate. He is due to have his 1st surgery (lip repair) May 3rd, I'm a little nervious. I don't have other children, but I do know of an excellent support group (so many members) and many of them have other children and situations similar to yours. The discussion group is located at www.widesmiles.org, someone there could definately help you.
Feel free to e-mail me at dmallan@telusplanet.net
Di
I have a 6 week old son who was born with a unilaterial cleft lip & bilaterial cleft palate. He is due to have his 1st surgery (lip repair) May 3rd, I'm a little nervious. I don't have other children, but I do know of an excellent support group (so many members) and many of them have other children and situations similar to yours. The discussion group is located at www.widesmiles.org, someone there could definately help you.
Feel free to e-mail me at dmallan@telusplanet.net
Di
- Di
Re: Cleft Lip Repair
by Valerie » Fri May 05, 2000 11:26 am
My daughter was born April 18, 1999 with a cleft lip.
She had her surgery when she was six months old. Emotionally I was confident in the
surgeon, but I just wanted to sleep through the whole thing.
I was scared! This was my baby, we had already been with her for six
months and weren't about to let anything happen to her.
Well, when it was all said and done I was amazed. She was so
different, even just minutes after the surgery.
It was tough to see her in pain, and the feeding was a real challenge.
After a week things got alot better, she was eating with a bottle again
and was playing and crawling (with supervision of course, don't want any falls).
Don't worry, if your confident in your doctor you'll be fine. Be Strong!
P.S. I have a six year old step son. He was very anxious to see his new baby sister
after she was fixed. We just explaned to him that Hailey was
born with a small owee, and the doctor was going to
put some stiches and a big band aid and then his sister was going to be all better.
You know your child, how they are emotionally. Just explain it however you
think that they will understand.
She had her surgery when she was six months old. Emotionally I was confident in the
surgeon, but I just wanted to sleep through the whole thing.
I was scared! This was my baby, we had already been with her for six
months and weren't about to let anything happen to her.
Well, when it was all said and done I was amazed. She was so
different, even just minutes after the surgery.
It was tough to see her in pain, and the feeding was a real challenge.
After a week things got alot better, she was eating with a bottle again
and was playing and crawling (with supervision of course, don't want any falls).
Don't worry, if your confident in your doctor you'll be fine. Be Strong!
P.S. I have a six year old step son. He was very anxious to see his new baby sister
after she was fixed. We just explaned to him that Hailey was
born with a small owee, and the doctor was going to
put some stiches and a big band aid and then his sister was going to be all better.
You know your child, how they are emotionally. Just explain it however you
think that they will understand.
- Valerie
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