by australia » Mon Jun 06, 2005 3:43 am
Hi,First of all my husband and myself know what you are going through.We gave birth to our third daughter on 4-4-05 born with Pierre Robin Sequence!She was sent to the Childrens Hospital in Melbourne the day after her birth and we were told we would be there for awhile,she had a breathing tube put in and we watched to see if her jaw would grow by itself,she had sleep studies which she failed very badly and it looked more like that she would need the Jaw distraction surgery.Week 4 we were told that our little girl needed the operation,one week later she had the surgery