We have two boys with sticklers( 8 and 9 ) , would like to hear from others,they also have pierre robin.Not many doctors here in canada that now much. one son has had his lower jaw extended but has not grown since then. Currently dealing with alot of orthodontics stuff(expanders, teeth pulling,C,B,J???.Both boys had cleft palates, one is still very hyper nasal(gets picked on alot at school)lots of jiont pain does it get any better????this is getting to be very emotional for all of us.ANY ONE WISH TO TALK PLEASE
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