Aisling Muscular d. cleft lip and palate
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We are very interested in your website as it is great to hear from both parents and people who have cleft lip and palate. We have tried to make contact before but have had no replies. Our daughter, Aisling (it means Dream, in Irish, as you may have gathered from our address, we are from Ireland.) Aisling has cleft lip and palate - Bilateral and missing all of her palate. In addition to this, she has Muscular Dystrophy and had very badly dislocated hips, thalipes (another name for deformed feet). Her neurologist has suggested that the problems might be related and we would be very interested in hearing from anyone who has come across a combination of cleft lip and palate with any of the above. We are spending our time dealing with the reality of these problems but would love to hear from anyone who had been through the same. We check this list regularly but feel free to reply personally at bmcelligott@tinet.ie.
By the way, has anyone on the list used the Hanen Programme? We have just started on it and would be very interested in hearing anyone's opinion on it.
Brendan McElligott.
By the way, has anyone on the list used the Hanen Programme? We have just started on it and would be very interested in hearing anyone's opinion on it.
Brendan McElligott.