need info on new technique/crouzon

[jennifer]

i have a beautiful five year old daughter that has been
diagnosed with Crouzon. her doctor says that she is a good
candidate for a new procedure called distraction osteogenisis. if
anyone has any info please poston the discussion board.
thanxxxxx!!!!

[jaymerenae@yahoo.com]

did you ever find out any information. I too am a good candidate, but i can't find out very much information.