Pierre Robin Syndrome/Stickler Syndrome - from an experience
Posted: Sat May 29, 1999 8:37 pmI have an 11 year old son with PRS and SS. I would be very
glad to help anyone with any concerns about either condition. We
have been through it all; trach, palate repair, ear infections,
sphincter pharyngoplasty and now retinal detachments due to the
SS.
Please let me know if I can help or if you need info.
glad to help anyone with any concerns about either condition. We
have been through it all; trach, palate repair, ear infections,
sphincter pharyngoplasty and now retinal detachments due to the
SS.
Please let me know if I can help or if you need info.