SMILES

Hi



And info on the above stated syndrome would be greatly
appreciated. Also info on how to get in touch with others. My
email is emb484@mail.usask.ca Thanx

My daughter Verena ( 16 years old) Is looking for some others in her age, which have a crouzon syndrom, too.She wants to change emails. Her email adress is verena123@aol.com. Thank you very much