Pierre Robin Syndrome
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We have a beautiful 1 month old son who was diagnosed with
Piere Robin after turning blue when we attempted to feed him in
the hospital. He has a wide cleft palate and is fed through a
gastronomy tube. He breathes beautifully in a prone position but
his breathing becomes very labored when on his back. My husband
and I are first time parents and would appreciate any tips you
may have. Changing clothes and diapers seems like a race against
time sometimes though he has never changed colors. We would love
to hear how other parents have combatted the challenges of these
postional breathing difficulties. Thanks. cstrasel@aol.com
Piere Robin after turning blue when we attempted to feed him in
the hospital. He has a wide cleft palate and is fed through a
gastronomy tube. He breathes beautifully in a prone position but
his breathing becomes very labored when on his back. My husband
and I are first time parents and would appreciate any tips you
may have. Changing clothes and diapers seems like a race against
time sometimes though he has never changed colors. We would love
to hear how other parents have combatted the challenges of these
postional breathing difficulties. Thanks. cstrasel@aol.com