midline cleft lip and palate

[craftstephanie@hotmail.co]

My daughter was born with a mid line cleft lip and palate,which is rare. Instead of one out of seven hundred, she is one out of twenty five thousand. We are going to Riley hospital, but the dr we are working with has only worked on six, and does not know the outcome of them. As he says they are a work in progress.
I am trying to find a dr that works specifically with her condition, and knows what the outcome could or can be. If anyone knows how I can get in contact with a dr who specializes in mid line cleft lip and palates, please email me as soon as you can. Thank you.