My daughter had a cleft palate. She was a premie at 30 weeks gestational age at birth. She weighed 1 lb 15 oz and was in the neonate center for 4 months before she came home for the first time. She was a failure to thrive for a very long time. The drs and nurses would not allow her to eat by mouth because it drained her energy. We eventually had a mic-key button installed. Due to a congential heart defect she was unable to get her repair doen until June 2001. We see a speech therapist weekly but are not having any progress. I am looking for help from anyone who has been in my shoes. She keeps her tongue up to protect the hole in the roof of her mouth that is no longer there. She will not swallow. Please assist me in anyway you can.
Thank you