Crouzons syndrome

[Nola Barns]

I have a sister with crouzon syndrome. She is 36 years old and has had corrective surgery. I have got it slighly ie big eyes and nose. I have four children aged from14 to 6. They are not affected. My son did have a cleft lip though. What are the chances that their kids will be affected

[Calvero]

I don't know enough about Crouzon syndrome to answer your question, but you can try visiting the Crouzon Support Network at <a href="http://www.crouzon.org/">http://www.crouzon.org/</a> . They have a mailing list, live chats, and some other things as well


Kim
The Cleft Club
<a href="http://cleftclub.cjb.net">http://cleftclub.cjb.net</a>