Just found this website. Our son Alex is going to be 6 years
old next month and he was born with Pierre Robin Syndrome. We had
a very rough time and he was trached for just over 4 years. He
has been without a trache now for over 18 months. He also was
thought to have a syndrome called Campomelic dysplasia. I would
love to hear from anyone with a child who has similiar findings.
I would also like to know more about campomelic dysplasia. I also
would like to offer my support or knowledge to any family living
with a Pierre Robin child with a trache. Please contact me at
tzator@idirect.com.