STICKLERS SYNDROME

[VICTORIA,B.C.]

WE HAVE TWO BOYS(10&11), BOTH HAVE STICKLERS ANDPIERRE ROBIN.LOOKING FOR ANY INFO ON BOTH. BOTH BOYS ARE IN NEED OF JAW SURGERY,YOUNGER ONEHAD JAW SURGERY WHEN HE WAS FIVE, LOTS OF DENTAL WORK NEEDED. BOTH BOYS WEAR GLASSES, HEARING IS OKAY SO FAR, BUT BOTH BOYS HAVE MAJORJIONT PAIN,EVEN TYLENOL#3DOEN'T DO ANYTHING. HELP......EMAIL littlebear@telus.net