A father needing help

[Andrew S. Fulkerson]

My son, Evan, was just born on August 13, 2001. To mine and my wifes surprise he has a Cleft Palate and Pierre Robin Syndrome. The Cleft Palate I have heard of, but the Pierre Robin is all new to me.


After birth Evan was transported to Rainbow Babies and Childrens Hospital in Cleveland for 1 week. He was then discharged. After a week at home he wouldn't eat for my wife and I. So he was re-admitted to RBCH.


My wife and I had no idea of any of this. We were expecting a healthy baby boy, a two day stay at our local hospital and then go home and introduce Evan to our 14 month old. I need any and all information that people are willing to give me. If you think it will help send it to


andrew.fulkerson@MBT.com


I know I'll get through this but the last three weeks have been more than expected.

[Calvero]

Congradulations on the birth of your son! Well, for Pierre Robin a good site for info and support is at <a href="http://www.pierrerobin.org/">http://www.pierrerobin.org/</a> . I have a list of cleft sites one my site at <a href="http://members.tripod.com/~Calvero/cleft/info.htm">http://members.tripod.com/~Calvero/cleft/info.htm</a> . You can also call Cleftline at 1-800-24-CLEFT.


All that should help answer any questions you may have. Good luck!


Kim,
The Cleft Club
<a href="http://cleftclub.cjb.net">http://cleftclub.cjb.net</a>