Question about Organizations to help Cleft Kids

[Jen]

I am wondering if anyone knows of any organizations that can help with financial needs of cleft kids. My insurance will actually pay for the medical bills, but the travel, meals & lodging won't be covered because the service is offered within a 50 mile range from our home. I live in Minnesota and we found Dr. Magee in Virginia that we feel most comfortable with about the surgery. If anyone can help answer my question I would appreciate it!
Jen

[Anonymous]

Jen,
My name is Cindy. My son Alec was born with a cleft lip and palate. I fought with insurance and they finally agreed to let us use Dr. Magee as well. We were outside the area as well. Dr. Magee's office put us in touch with the Ronald McDonald house which is right across the street from the hospital. It was only $8 a night. We had the cleft lip and palate surgery at the same time when Alec was 6 days old, and the stay was still only two days in the hospital and one for the pre op stuff. You have to call ahead there though and they don't guarantee until closer to the date, but we have stayed there twice without difficulty. The place has food galore too. Many churches and local people bring food. Also, there is a pizza delivery night there. Check it out. I will try to locate the number for you. - Cindy ps: isn't Dr. Magee the greatest. My son is now 12 months old. He has never had an ear infection, he says many words, he sucks through a straw, etc. He is truly the best.

[M & T]

Jen, I am not aware of an organization to assist with the travel expenses the insurance will not cover. However, here is the phone number to the Ronald McDonald House (757) 627-5386 it is with in walking distance of the hospital and Dr McGee -Dr Denk's office. Dr Denk repaired my daughter's unilateral cleft lip about 5 months ago. I fortunate that the these wonderful specialist are locally accessible to me and my family. I would love to assist you in making phone calls, provide support, or transportation when you are in the area. You may contact me at cavafwb@aol.com. Please include Cleft Kids in the subject title so I know it is you. Praying for you and your needs