CLEFT PALATE/LIP

[LODI]

My daughter was born with a uni-lateral cleft lip and palate.
She underwent 3 major surgeries prior to her lst birthday. Now
she is four years old and one of her nasal passage is noticeably
smaller than the other one. When I mention this to her plastic
surgeon he states that he will not repair her nose till she is in
her teens. I am very concerned about the taunting she may receive
from other children when she starts kindergarten next year. We
live in state where we have only two plastic surgeons and our
health insurance will only pay for surgery that is a medical
necessity. I would like to hear from any one out there who has
experience and would offer me advice under these circumstances.

[Susan]

Hi My son was born with a bilateral cleft lip and palate and
his plastic surgeon did a surgery just prior to starting
kindergarten and he worked on his nose to reshape and fix the
noticable size differance he had. We have had some trouble with
our insurance as well. We live in the Dallas area so we had lots
of doctors to pick from. Just a thought you may want to look into
scotish rite for children. They do not charge and no child is
turned away for treatment. We have been thinking about useing
them ourselves for our son. If you want to talk e mail me at
queensheets@ilovejesus.com God Bless, Susan

[Italy]

Salve, se siete una famiglia italiana, io mi chiamo Giovanni
ed avrei un paio di Centri polivalenti, non a scopo di lucro, da
segnalarvi, che si occupano della Labiopalatoschisi, caso clinico
che ha colpito anche me e dal quale mi sono completamente
ristabilito dopo diverse chirurgie. In alternativa a quesa Lista
di discussione, potete scrivermi a: giovanni@mediatec.it. Ciao.

[midget0912@aol.com]

Lodi, my son was born with a bi-lateral cleft lip and palate.
we started wortking with our local children's hospital, which has
a wonderful team for this. I found out last summer (4 years too
late) that the shriners have a cleft clinic in chicago. I had no
idea that they have that. contact them and see if they can help
you out with your child's nose. The shriners have the best to
help.

[Elizabeth]

Ciao, come stai? Mia filio,Samuele,del (cleft) molle palato.
Non credo mia italiano un buon!

[Giovanni (Italy)]

Hi Liz, I'm Giovanni and I wanted send you a new message, but
I don't remember more your e-mail address. If kindly you can
remember it to my e-mail address: giovanni@mediatec.it. Good-bye!
Giovanni