Pierre Robin Syndrome/Stickler Syndrome - from an experience

[nbarry@adams.net]

I have an 11 year old son with PRS and SS. I would be very
glad to help anyone with any concerns about either condition. We
have been through it all; trach, palate repair, ear infections,
sphincter pharyngoplasty and now retinal detachments due to the
SS.



Please let me know if I can help or if you need info.