finding a team

Children and adults with cleft lip and/or palate issues

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finding a team

Postby petegav@aol » Tue Apr 06, 1999 12:18 am

Did anyone use the teams at NYU, Cornell, Schneiders or
Philadelphia Childrens?
petegav@aol
 

Re: finding a team

Postby Lee » Thu Apr 08, 1999 8:17 am

Congratulations on the new addition to your family. I too had
a daughter in 1992 with a cleft palate. I'm not familiar with the
New York area but I was wondering if you had considered the
Shriner's hospital? They have a children's hospital in Chicago
that deals with corrective surgery for children with cleft lips
and/ or palates. They are the ones that operated on my daughter
when she was 14 months old to correct her palate. I could not
have asked for better doctors. This organization is a gift from
above to all of us that need them. I am so grateful to them. My
daughter is now 6 years old and in kindergarten. She is a very
happy, healthy, normal child and I have Shriner's to thank. I
just thought it would be an option for you. Good luck in your
search and just remember to give that little girl lots of
love...that's where the real healing comes from. If you'd like,
you can email me for more information. lela@ficom.net
Lee
 

Re: finding a team

Postby Elizabeth » Fri Apr 09, 1999 3:02 pm

You seem to be able to travel; are you close to New Haven? I
have been going to the Yale Childrens Hospital Craniofacial Team.
My son is only 5 months old, but we love Dr. Shin. Maybe you
could check them out. Good luck!
Elizabeth
 

Re: finding a team

Postby Dale Mc » Mon Apr 26, 1999 9:28 am

After finding out at 24 weeks that my baby had a cleft lip
(unilateral) I have been speaking with many parents with
experiences like us. One that I spoke to had a son with a
bilateral cleft lip and the entire cleft palate (soft and hard).
I spoke with her and her son who had the repairs done by the team
at Cornell. I could'nt even tell that he had it. They did a
phenomenal job!! If your close to the center visit them. They
welcome all questions!!! good luck!
Dale Mc
 


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